Caregiver Bill of Rights

I've been taking care of my aging mother for at least three years now. I've been a caregiver since 1996, in some capacity or another, for people with physical disabilities and developmental disabilities. What I can tell you is that it's rough; it is draining, stressful, emotionally a sock in the gut. It can take a toll physically and psychologically. This list is very accurate in terms of what taking care of someone can do to you, and what is done to you, and it is very helpful in putting things in perspective. I was given some phone numbers and literature pertaining to support for caregivers, this Bill of Rights was among the things I received. I am going to look into respite and other support, to ease the damage and to make life better for myself and my mother.

Caregiver Bill of Rights

I have the right:

To take care of myself, this will allow me to take better care of my loved one.

To seek help from others even if my loved one objects, as there are limits to my own endurance and strength.

To maintain areas of my own life that does not include the person I care for, as I have the right to do some things just for myself.

To get angry, be depressed, and be able to acknowledge my difficult feelings and emotions in a healthy way.

To reject any attempts by the person I care for to manipulate me (either consciously or unconsciously) through guilt, anger or depression.

To receive consideration, affection, forgiveness, and acceptance for what I do for my loved one, and I will offer these in return.

To take pride in my accomplishments and the courage it takes to meet the needs of my loved one.

To protect my individuality and my right to a life for myself, particularly when my loved one no longer needs my help full time.

To expect and demand that strides will continue to be made toward aiding, acknowledging and supporting caregivers.